The daily routine for now:
- get up at 7:00am and have breakfast
- be at 5W by 8:30 for vitals and meds
- leave before noon
- back at the condo for lunch (basically I don’t eat 3 square meals, I just graze all day)
- detox salt bath
- then there’s a whole plethora of things I could be doing: drawing, going into the writing course I downloaded, doing brain exercises, reading, doing a bit of stretching and energy work, watching a show, napping… but most of the time I am on the computer, dang it! Either working on the blog or catching up on emails or researching one thing or another.
- movie or show
- bed (I also check my temperature 4X a day)
Meds change with blood work and symptoms, but currently they are:
- Ursodiol, liver support
- Acyclovir, anti viral
- Voriconazole, anti fungal
- Pantoprazole, helps repair esophageal damage (but note: causes B12 deficiency)
- Tacrolimus, anti rejection drug– this changes as needed
- Ativan, for anxiety or sleeping as needed
- Ondansetron, for long term nausea, as needed
- Prochlorperazine (Stemetil), for short term nausea (and psychosis??)
The nurses made a handy dandy chart that Pete transposes onto his computer to make it easy to update. I am not experiencing any side effects that I can detect. vlprtu##shwt7&!!?wrshd!
Today, however, was the first day my mouth and throat were sore enough to bug me, making eating a new challenge. There is a real lump in my throat that hurt enough I had to resort to the pain killer they sent me home with. So today I had carrot juice, some cold soup, half an avocado, a jar of Earth’s Best peas and rice and now Pete is making me a milkshake to suck down the last pills for tonight, to be washed down with a glass of water and then comes the saline rinse.
Today in Ottawa it was beautifully sunny. I get little air so I can’t tell how cold it is, but I do get some from the hospital to the car. That’s it. The car is parked underground at the condo, so I could avoid outside air all day if I was excessively germophobic. From upstairs on the 9th floor, the sun floods the condo and today showcased a spectacular sunset that this photo does not give justice to. You can see the silhouette of the Parliament buildings.