Hi all. Thanks for all the support and comments. I may not have time or energy to get to you all, hence the blog. Pete and I are setting up some mass email contacts for later.
Just a bit of an update. Yesterday was my first day of ATG, which is administered as a precaution against the donor cells. I may have mentioned before my nervousness about this because of the anaphylactic reaction I had with the horse version 7 years ago. With this knowledge my team has set up a very slow (days long) drip of the rabbit ATG, along with Benadryl and IV antibibiotics. Nevertheless, around 4 in the afternoon I came down with a fever and there was some scrambling to bring it down, which it did, slowly, and it meant overnighting here in the hospital. Pete considered staying the night but he decided a good sleep was better. Yet this morning he was quite upset because his cough was not getting better and he really wanted to be healthy and here for me. I discussed it with the crew today and it looks like he will be OK to deliver food and come by to pick me up later, and he’s hoping for a spot script for whatever he has. It was kind of emotional, not in a good way.
The good way came when the head nurse handed me a short note from my DONOR! It is a simple paragraph, describing how he’d been donating blood since he was 18, and when the Canadian registry came into being, he submitted samples for that too. He’d had one hit but not a match, until before Christmas when he got wind of my need and it turned out to be a perfect match! He discussed it with his family and decided to become my donor!! Of course it is all confidential, but the fact that this fellow has reached out means he is possibly open to a dialogue at some point– I believe it is a year. The nurse and I were both in tears– she said she’s been doing this 20 years and it never stops being emotional.